UNCRPD Article - 31.

Statistics and data collection (Article 31)

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• The State should collect appropriate information to implement the rights of disabled people listed in this convention. 

• Personal data collected should be secured and kept confidential.

• Governments must make sure that disabled people can access the information they have collected the same as everyone else.

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Article 31 (Statistics and data collection)  https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/article-31-statistics-and-data-collection.html